It is day 7 of chemo. Today I woke after fitful sleep to my
body hurting in the most unusual way—throbbing pain in my back and legs. I
pulled my body out of bed and discovered that I couldn’t sit or lie or bend
without some pretty serious pain. I had to shuffle slowly around the house,
mostly miserable and feeling sorry for myself. I have meditated and showered
and breakfasted and taken the mostly-forbidden pain killer (these mask fever
which is the most important sign of the most dangerous side effect of chemo—what
the doctors call lifethreateningbacterialinfection as though it’s one word).
But now I am human again and able to sit without much pain.
Mostly, this has been a fairly easy first week. I’ve been
tired and a little foggy, but I have been in very good shape, considering. The
mouth sores have begun which is a real pain, and now this bone pain, but I am
mostly feeling very fortunate.
As I’ve been trucking through these last months, I’ve begun
to notice that there are some thoughts that have a level of toxicity that they
become Forbidden Questions. As I have
danced with them and pushed them away, I’ve been noticing that they’re probably
forbidden for all of us, not just during times of cancer. I’ve figured out some questions that I find much more helpful and thought I’d see
if you find them more helpful too. Here’s the one that tends to hurt the most:
How can I get my life back?
During times of change we did not seek, this question must be
with all of us, even when it's most impossible. It first roared into my head nearly 22 years ago when my cousin
MaryEllen died. The thought that pounded over and over again was, “When do I
wake up from this nightmare and find that things are back the way they were?” This
must happen to you too when life brings you something you hate: when your
relationship goes bad, when your job gets cut, when the doctor takes a deep breath before telling you about the test results.
In the last months, I have looked at my poor battered body
and wondered again and again when I will get
my life back. And as I begin this chemo period I trip into wondering the
same—do I get my life back on 16 June? And I have friends who talk about when
things “return to normal.” But many of these changes are irreversible—I will
never ever be the way I used to be. I have crossed into new terrain, and parts of the old world are long behind me. I am learning that I do so much better
without looking backwards. I think lots of our changes are like this—our deep
desire to really go through unscathed, unchanged, to have the life we were used
to. I feel that urge deep in my bones (especially today as my bones hurt so
much) and I have come to find that question more poisonous than the chemo, and with
no appreciable benefits.
At first the thing that holds us in these changing times is
just the loss that piles around our knees. Every memory is the death of a life we
weren’t choosing to alter. And instead of seeing the possibility of the newness
around us, I think we focus on the losses that are so obvious. I watch it
happen to me. Instead of liking this new haircut, I miss the curls I used to love.
Instead of appreciating the open space of these next three months, I feel sad
about the class at Harvard this week that will get taught by a video of me
instead of me in person. My eye gets drawn to the hole in my life and not to
the possibility of something new.
I am so much healthier when I ask instead, “I wonder who
I’ll be next?” I can look at the losses scattered around me and face the
changes in new way. I am in the middle of a Great Becoming. I’m not sure how it
ends up. My life is transforming around me, my body is sloughing off its cells,
my immune system is starting fresh. My changes have changed others in
unexpected and unpredictable ways—I have clients who are spending more time
with their children, friends who are exercising and taking better care of their
bodies. We are all in the middle of becoming something new. I wonder who we’ll
all be next.
When I begin to ask this question, instead of the focus on
the brokenness of what has been (and is not coming back), I reach into the new
emerging of what seems to be being born. I am more in love with the world than
I have ever been, more tuned into the arc of a wave blown by the wind. I live
in gratitude for my friends and family. I feel deep and enduring compassion for
those who are sick or in pain. I have been those ways before, but they are
growing in me each day and are shaping the new form of who I am becoming and
what I will do next.
I will not be who I was. I will not return to normal. I will
not move on and forget about this time. And if I could do all of those things,
wouldn’t it be sort of tragic? Because boy has there been pain and misery on
this path, just as there are on the paths of all of those who face changes they
did not choose (which is all of us, right?). Wouldn’t it be a shame if this path
of pain was a kind of loop track, dumping me off at the beginning of the
journey, undisrupted and pretending I had never left home as I waited for the
scars to fade? This path is taking me into a new place, and each loss is a sign
of a piece of me I cannot carry into the future world. And I believe—I really
believe—that each of us will be better next than we used to be. This is not in a blind “everything happens for
the best” sort of way, but in a deep belief in the human spirit to take pain
and loss and metabolize them into development and compassion and love. Right
now, my body is working overtime to be new; it is nearly a full time job. I
will try to be present in the unfolding of it, holding the amazing delights of
the moment when the pain stops and the world feels peaceful again, the joy of
laughing over a cup of tea with a friend. I am becoming something new and unexpected.
What are you becoming next?